Living with a rare disease or caring for someone who has one can be challenging. We want to know how you keep your own cup full while navigating difficult symptoms, multiple tests, and/or the exhaustion of fighting to be believed.
mastcell1104 Member
I am a caregiver which fills my cup up. some days I am my own caregiver rest up for myself
CommunityMembercc8a60 Member
I take long, warm baths
Lcplyler Member
I have found that spending time with my plants and flowers helps me stay grounded and focused. Also, when I take my daughter to appointments, we do our best to have a little bit of fun and visit her favorite places to eat and shop.
Donna.Flood-Amaya Community Admin
, both of those sound like lovely ways to fill your cup and inject some joy into otherwise hectic days. I love gardening as well - I am slowly piecing together a scent garden. -Do you have gardening goals? Warmly, Donna (team member)
Jan Mac Member
I thank God for a very supportive family and great friends that help me cope daily.