News, research and important articles in idiopathic intracranial hypertension.
Clinical trials are conducted to collect data about the safety and effectiveness of a potential new test, drug or device before it is approved or widely used.
EURORDIS, a European alliance of over 700 rare disease patient organisations, publishes a new position to ensure patients’ early access to new medicines through Compassionate Use Programmes (CUPs).
Researchers gave octreotide injections to five women who had not responded to normal idiopathic intracranial hypertension (IIH) treatments.
Share your experience with the IIH community and learn from others like you.
Steph, 33, is a wife and mother to two young boys and lives with idiopathic intracranial hypertension (IIH) in the UK. In this blog she describes her long journey to getting the correct diagnosis.
Karen shares her experiences of different idiopathic intracranial hypertension (IIH) treatments with the community.
Nicola shares her experience of taking part in clinical trials and why she would urge all rare disease patients to consider one.
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Raremark can help you take part in a clinical trial.What is a clinical trial?
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